I work with people with rare diseases and they are amazing people

Because rare diseases have taken so many lives that could have been saved

Parents with children with rare diseases suffer a lot because they don't get any answers and help for their children. Every parent wish to have an answer on the question what will be the possible future of my child

As a rare disease advocate I see how patients in the US are receiving life saving treatments for their rare disease, but patients in Ghana and other African countries cannot access them. This is so incredibly sad for patient families.

Because I live with a rare disease and I want to be part of changing the narrative.

i have a son with a rare disease

I believe it's a right of every citizen. it's high time we took a stand for a national consensus on health

As a mother and a primary care giver of a child with a rare genetic condition signing this petition may help push for better healthcare policies, insurance coverage, funding for medical research, inclusion and equity for families and people living with rare conditions.

This petition is so important to me because I am a mother of a child with rare genetic condition.

Because I have a child with a congenital condition and there is a strong need for policy guidance on support for families like mine

Rare disease patients in Ghana often struggle to access proper diagnosis, treatment, and specialized care. A national strategy would ensure better healthcare infrastructure, funding, and medical expertise for those affected.

Petitioning can help raise awareness about Rare diseases, their impacts on patients and families and the need for support and resources.